Knowledge Network Parkinson

On January 15, 1999, the German government decided to sponsor nine medical competence networks, among them the Kowledge Network Parkinson. For this network, iAS has taken on the responsibility of the network technology and the design of the user interfaces.Please click below to go to Knowledge Network Parkinson.

kompetenznetz-parkinson

What is Parkinson?The idiopathic Parkinson syndrome (Parkinson disease) is the most common affectation of the basal ganglia. It is caused by a damage of the neurons in the substantia nigra inducing a shortage of dopamine in the striatum.

The cardinal clinical symptoms are: retardation of movements (bradykinesia), a trembling of the body while at rest (rest tremor) and a stiffness of the muscles (rigor). A high percentage of the patients suffer from depressions, and in the long run one third develops dementia and yet another third is subject to a drug-induced psychosis. Moreover, vegetative disturbances generally occur, and if the disease sets in early, the patient is usually rendered unable to work in the course of only a few years.
Goals of the Knowledge Network Parkinson:The Knowledge Network Parkinson wants to achieve:

* A central patient database

* A collection and analyses of tissue samples (DNA database, brain database)

* Decentralized databases, containg the research results of the various projects

* A central database with data concerning costs and supply

* The rapid transfer of results from research to practical applications

* A platform for therapy guidelines

* A platform for diagnosis guidelines

* New, more efficient documentation standards

* A platform for the internal communication (communication base)

* Vocational training via new media (streaming digital videos etc.)

* A platform for public relations

The intended structure of the Knowledge Network ParkinsonThe horizontal net = the research net

The horizontal net comprises 10 research projects from the following areas: basic research, diagnosis, therapy and centralized facillities. Each of these areas is supervised by a coordinator, who is the speaker and representative of the central consensus conference relating to research.
The vertical net = the supply research net

The vertical net organizes the supply facilities. In the first phase, the vertical net is to be set-up in five regions, with participants from the following areas: university clinics, general hospitals, medical specialists, general practitioners, rehabilitation centers, and regional Parkinson associations. The respective regional centers will be supervised by one of the university clinics. Representatives of the sponsors and of industry will belong to the vertical net as well. The vertical net serves both supply research and clinical research. It’s intention is to transmit knowledge from the university hospitals to the practices and at the same time to transfer new ideas from the primary supply to the clinics.

The various activities are coordinated by the so-called Knowledge Network Parkinson secretariate that also forms the link between horizontal and vertical net. In cooparation with the central concensus conference, the secretariate is responsible for the quality of the contents as well as for the technical aspects. The central consensus conference consists of the coordinators of the four research areas (horizontal net) and the managers of the five regional centers (vertical net). One of the tasks of the central consensus conference is the development of guidelines for therapy and diagnosis, new documentation standards as well as the conception of vocational training events and related matters.